On November 6th- 8th, 2015 China hosted the first ever Regional International Meeting for Autism Research (IMFAR) Conference in Shanghai. Many well-known organizations and universities, such as Autism Speaks and Duke University, have been working with the Chinese government and universities with the goal of working collaboratively to improve the lives of people with autism spectrum disorder (ASD) and their families as well to support and advance ASD research. The conference was a huge success as it allowed many scientists, clinicians, educators and parents from around the world to meet and exchange knowledge with one another and encompass global perspectives about ASD. Five clinicians from LIH Olivia’s Place, one from each discipline, created an e-poster on using an inter-disciplinary team approach for screening, diagnosis and early intervention of ASDs. They discussed the assessment and interventions highlighted with many well- known researchers, clinicians, local educators, and parents. Fengyi Kuo, Occupational Therapist, also presented an e-poster on transition and therapy services for adolescents and young adults with ASD. An LIH Olivia’s Place high school intern, Tiffany Lu from Dulwich College Suzhou, also participated in many informative professional sessions that this conference had to offer. In addition, the clinicians and other participants attended lectures on a variety of topics, many of which highlighted the huge progress that is being made worldwide in developing effective interventions and assessment measures for children with ASD.
For Jamie Fanelli, Behavior & Learning Support Lead at LIH Olivia’s Place, the conference was an incredibly rewarding experience; she reflected that it “reinforced why I personally love my job so much— the opportunity to move forward in improving the standard of therapy in China and positively impact quality of life for so many individuals with ASD and special needs. It was a true pleasure to meet and develop relationships with several of the world’s leading researchers in ASD and even more so with local educators, physicians and parents. All of whom are extremely dedicated to improving the lives of children with ASD and their families here in China.”
One of the more memorable experiences for Sophia Guarracino, Speech-Language Therapy Lead at LIH Olivia’s Place Shanghai, was listening to a parent question-answer forum. During this time, parents were able to ask any questions to a panel of presenters. Most of the parents’ stories were heartfelt, sharing feelings of being overwhelmed, helpless, and not knowing where to turn for knowledge to better understand their child’s condition. For Sophia, hearing parents’ stories about their children being asked not return to school “made it so clear that there is such as a need of more education and support for both Chinese families and China’s educational system, to better help serve the needs of these children with autism. That is why it is inspiring that LIH Olivia’s Place can help support this need as it continues to develop and spread the expertise in this field.”